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Validation of the Swedish version of the Pain Catastrophizing Scale for Parents (PCS-P) for parents of children with cancer

Journal article
Authors J. T. Cederberg
Sandra Weineland
J. Dahl
G. Ljungman
Published in Journal of Pain Research
Volume 12
Pages 1017-1023
ISSN 1178-7090
Publication year 2019
Published at Department of Psychology
Pages 1017-1023
Language en
Keywords The Pain Catastrophizing Scale for Parents (PCS-P), validation, parents, cancer, pain, cross-cultural adaptation, action questionnaire saaq, low-back-pain, experiential avoidance, psychological distress, coping strategies, fear, acceptance, disability, intensity, Neurosciences & Neurology
Subject categories Neurosciences


Objectives: Pain is reported as one of the most common and burdensome symptoms for children with cancer. Pain catastrophizing is clearly related to pain intensity and disability. Catastrophizing in parents is associated with both child functioning and parent distress. The Pain Catastrophizing Scale for Parents (PCS-P) remains to be validated for parents of children with cancer. The aim of the study was to validate the Swedish version of the PCS-P for parents of children with cancer experiencing pain. Methods: Parents of all children who were being treated for cancer in Sweden at the time of the study were invited to participate. Study material was sent out to the registered address. Internal consistency, test-retest reliability, and convergent validity were calculated, and factor analysis was conducted. Descriptive statistics was used to investigate the background data and norm values. Results: A total of 243 parents participated in the study. The results did not support the original three-factor structure of the PCS-P, but rather suggested that a two-factor structure best represented the data. The results showed excellent internal consistency (alpha=0.93), excellent temporal stability (intraclass correlation coefficient =0.86) and moderate convergent validity (rho=0.57). The mean (SD) for the PCS-P in the sample was 28.3 (10.7). A statistically significant difference was found between mothers and fathers, where mothers reported a higher level of pain catastrophizing than fathers. Conclusion: The psychometric properties of the PCS-P has now been supported in a sample of parents of children with cancer, and norm values are now available. The factor structure does, however, deserve more investigation.

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