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Patient reported outcomes are associated with physical activity level in adults with congenital heart disease.

Journal article
Authors Annika Bay
Mikael Dellborg
Malin Berghammer
Camilla Sandberg
Gunnar Engström
Philip Moons
Bengt Johansson
Published in International journal of cardiology
Volume 243
Pages 174-179
ISSN 1874-1754
Publication year 2017
Published at University of Gothenburg Centre for person-centred care (GPCC)
Institute of Medicine
Institute of Health and Care Sciences
Pages 174-179
Language en
Links dx.doi.org/10.1016/j.ijcard.2017.03...
www.ncbi.nlm.nih.gov/entrez/query.f...
Subject categories Health Sciences

Abstract

In general, adults with congenital heart disease (CHD) have impaired exercise capacity, and approximately 50% do not reach current recommendations on physical activity. Herein we analysed factors associated with physical activity level (PAL) in adults with CHD by using patient-reported outcomes (PRO).Patients with CHD (n=471) were randomly selected from the national register on CHD and categorized according to complexity of lesions - simple (n=172, 39.1±14.6years), moderate (n=212, 39±14.1years), and severe (n=87, 31.7±10.7years). Participants completed a standardized questionnaire measuring PRO-domains including PAL. Variables associated with PAL were tested in multivariate logistic regression.PAL was categorized into high (≥3 METs ≥2.5h/week, n=192) and low (≥3 METs <2.5h/week, n=279). Patients with low PAL were older (42.6 vs. 35.8years, p≤0.001), had more prescribed medications (51% vs. 39%, p=0.009), more symptoms (25% vs. 16%, p=0.02) and comorbidity (45% vs. 34% p=0.02). Patients with low PAL rated a lower quality of life (76.6 vs. 83.4, p<0.001), satisfaction with life (25.6 vs. 27.3, p=0.003), a lower Physical Component Summary score (PCS) (78.1 vs. 90.5, p<0.001) and Mental Component Summary score (MCS) (73.5 vs. 79.5, p<0.001). Complexity of heart lesion was not associated with PAL. The included PROs - separately tested in the model, together with age were associated with PAL.PCS and MCS are stronger associated with PAL than age and medical factors. The use of these PROs could therefore provide valuable information of benefit for individualized advice regarding physical activity to patients with CHD.

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