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The Meaning of Being a Living Kidney, Liver or Stem Cell Donor - A Meta-Ethnography.

Journal article
Authors Annika M Kisch
Anna Forsberg
Isabell Fridh
Matilda Almgren
Martina Lundmark
Charlotte Lovén
Anne Flodén
Madeleine Nilsson
Veronika Karlsson
Annette Lennerling
Published in Transplantation
ISSN 1534-6080
Publication year 2018
Published at Institute of Health and Care Sciences
Language en
Subject categories Health Sciences


Studies on living donors from the donors' perspective show that the donation process involves both positive and negative feelings involving vulnerability. Qualitative studies of living kidney, liver, and allogeneic hematopoietic stem cell donors have not previously been merged in the same analysis. Therefore, our aim was to synthesize current knowledge of these donors' experiences in order to deepen understanding of the meaning of being a living donor for the purpose of saving or extending someone's life.The meta-ethnography steps presented by Noblit & Hare in 1988 were used.Forty-one qualitative studies from 1968 to 2016 that fulfilled the inclusion criteria were analyzed. The studies comprised experiences of over 670 donors. The time since donation varied from 2 days to 29 years. A majority of the studies, 25 out of 41, were on living kidney donors. The synthesis revealed that the essential meaning of being a donor is doing what one feels one has to do, involving 6 themes; A sense of responsibility, Loneliness and abandonment, Suffering, Pride and gratitude, A sense of togetherness, and A life changing event.The main issue is that one donates irrespective of what one donates. The relationship to the recipient determines the motives for donation. The deeper insight into the donors' experiences provides implications for their psychological care.

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