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Reaching Independence Through Forced Learning: Learning Processes and Illness Management in Parents of Children Affected by Hemophilia

Artikel i vetenskaplig tidskrift
Författare Lind Myrin Westesson
Catarina Wallengren Gustafsson
Fariba Baghaei
Carina Sparud Lundin
Publicerad i Qualitative Health Research
Volym 28
Nummer/häfte 14
ISSN 1049-7323
Publiceringsår 2018
Publicerad vid Centrum för personcentrerad vård vid Göteborgs universitet (GPCC)
Institutionen för vårdvetenskap och hälsa
Språk en
Länkar https://doi.org/10.1177/10497323187...
Ämneskategorier Hälsovetenskaper

Sammanfattning

Hemophilia is a complex condition to manage, especially for parents to newly diagnosed children. This grounded theory study explores parents' learning processes and illness management in daily life during the first year after the start of their child's treatment. Using a longitudinal qualitative design, eight parents of four children were interviewed repeatedly during 12 to 14 months. The core category, reaching independence through forced learning, reflected the parents' learning process and their experiences of the challenges during the first year after start of treatment. Incentives for learning were characterized by a longing to reach independence and regain control of one's life situation. The emerging key incentive for learning was a desire to become independent of health care professionals. Early home treatment reduced the impact of the illness, and by supporting parents in different ways during the learning process, health care professionals can promote the parents' trajectory toward independency.

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