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Walking through life with cerebral palsy: reflections on daily walking by adults with cerebral palsy

Artikel i vetenskaplig tidskrift
Författare B. E. Gjesdal
R. Jahnsen
P. Morgan
Arve Opheim
S. Maeland
Publicerad i International Journal of Qualitative Studies on Health and Well-being
Volym 15
Nummer/häfte 1
Sidor 9
ISSN 1748-2623
Publiceringsår 2020
Publicerad vid Institutionen för neurovetenskap och fysiologi, sektionen för klinisk neurovetenskap
Sidor 9
Språk en
Länkar dx.doi.org/10.1080/17482631.2020.17...
Ämnesord Adults, cerebral palsy, walking, gait, reflections, interview, experiences, adolescents, fatigue, health, deterioration, management, norway, youth, pain, Public, Environmental & Occupational Health, Nursing, Biomedical Social, Sciences
Ämneskategorier Hälsovetenskaper, Neurologi

Sammanfattning

Purpose: Walking is a major target in childhood physiotherapy for children with cerebral palsy (CP). Little information exists on the importance or value of walking when these children grow up. The aim of this study was to explore personal reflections on daily walking by adults with CP. Method: Semi-structured individual interviews were conducted and analysed with systematic text condensation, a four-step thematic cross-case analysis. Results: Eight ambulatory adults (26-60 years, four women and four men) with CP were interviewed. Almost all had experienced deteriorated walking ability in adulthood and reported that walking was restricted and affected by intrinsic features, such as pain, fatigue, reduced balance and fear of falling. Extrinsic features such as being looked at due to walking abnormality and environmental factors, such as seasonal changes affected their free walking and was common. Some had accepted using mobility aids for energy conservation. Conclusions: Both intrinsic and extrinsic factors influence walking in adults with CP. Reflections by the adults with CP suggest these features may reduce participation in public spaces and potentially increase acceptance and use of mobility aids.

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