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Visual function and quality of life in children and adolescents with anophthalmia and microphthalmia treated with ocular prosthesis

Artikel i vetenskaplig tidskrift
Författare Beatrice Casslén
Y. Jugard
Rezhna Taha Najim
M. Odersjo
Alexandra Topa
Marita Andersson Grönlund
Publicerad i Acta Ophthalmologica
ISSN 1755-375X
Publiceringsår 2020
Publicerad vid Institutionen för biomedicin, avdelningen för laboratoriemedicin
Institutionen för neurovetenskap och fysiologi, sektionen för klinisk neurovetenskap
Språk en
Länkar dx.doi.org/10.1111/aos.14424
Ämnesord anophthalmia, microphthalmia, patient-reported outcome measures, quality, of life, visual perceptual dysfunction, generic core scales, united-kingdom, acuity test, vision, coloboma, questionnaire, reliability, instrument, cataract, validity, Ophthalmology
Ämneskategorier Oftalmologi

Sammanfattning

Purpose To evaluate health-related quality of life (HR-QoL), vision-related (VR-)QoL and perceptual visual dysfunction (PVD) among individuals with anophthalmia (A) and microphthalmia (M) treated with ocular prosthesis. Methods The study comprised 15 individuals (mean age 6.6 years; range 1.7-14.1) with unilateral A or M. Three validated instruments measuring HR-QoL and VR-QoL were used: The Pediatric QoL Inventory (PedsQL), consisting of physical and psychosocial self-report and parent-proxy report (2-18 years); Children's Visual Function Questionnaire (CVFQ); and Effects of Youngsters' Eyesight on Quality of Life (EYE-Q). Perceptual visual dysfunctions (PVDs) were assessed by history taking according to a specific protocol. Results A/M children and their parents showed low HR-QoL scores (PedsQL total score: 66.3; 69.6) compared with controls (83.0; 87.61) (p = 0.0035 and <0.0001, respectively, unpaired t-test). No differences were found between A/M children and parents, but parents tended to underestimate their children's emotional state. A/M children with subnormal visual acuity (VA) for age scored lower in physical health compared with A/M children with normal VA (p = 0.03, Mann-Whitney U-test). No significant VR-QoL differences between A/M children and references or between A/M children with subnormal or normal VA for age were found. More A/M children than controls exhibited PVDs in >= 1 area (7/11 versus 4/118; p < 0.0001, Fisher's exact test). Conclusion A/M individuals show poor HR-QoL and increased PVDs. No difference in QoL was found between children and parents, though the children tended to score lower in emotional well-being. A/M children with subnormal VA showed lower physical health score. These problems indicate the necessity of a thorough multidisciplinary assessment and follow-up of children with A/M.

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