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Pure Selection. The Ethics of Preimplantation Genetic Diagnosis and Choosing Children without Abortion

Bok
Författare Christian Munthe
ISBN 91-7346-362-0
Förlag Göteborg University
Förlagsort Göteborg
Publiceringsår 1999
Publicerad vid Filosofiska institutionen
Språk en
Ämnesord preimplantation genetic diagnosis, polar body biopsy, prenatal diagnosis, in vitro fertilisation, sex-preselection, embryo experimentation, medical genetics, reproductive medicine, ge¬netic selection, eugenics, public policy, medical ethics, bioethics, research ethics, ethics
Ämneskategorier Industriell bioteknik, Medicinsk genetik, Obstetrik och gynekologi, Reproduktiv hälsa, Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi, Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi, Socialrätt, Forskningspolitik, Teknik och social förändring, Praktisk filosofi

Sammanfattning

Preimplantation ge¬netic diagnosis (PGD) is taken to mark the starting-point of a new phase in human reproduction, where the possibility of choosing children on genetic grounds without having to resort to ethi¬cally controversial procedures (such as abortion) will grad¬ually increase. Ethical and political issues actu¬alised by this develop¬ment are addressed. The discussion touches upon issues regarding the moral status of em¬bryos and gametes, the moral import of respecting individual auton¬omy and its implications for the requirement of informed consent in health-care, the connec¬tion between sickness, dis¬ability and the value of life, the moral status of possible future people, and the connection between choosing children and eugenic policies of the past. Practical policy issues are adressed on the basis of this, as well as an empirical case-study of the intro¬duction of PGD in Sweden. The book ends up in a set of recommendations regarding the management of re¬search on, introduction and routine use of procedures for pure se¬lection, both within health care and from the point of view of society as a whole. It is argued that research on such procedures should be allowed and supported by society. However, tight restrictions regarding the clinical introduction of new procedures in this area is highly desirable. A rough model for implementing such re¬strictions is also pre¬sented. It is further asserted that, although reasons of economy and safety should limit the access to pure se¬lection, society should not apply any explicit restrictions based on ideasregarding how different traits affect a person’s quality of life. It is stressed that, in order to to avoid a re¬sur¬rection of eugenic policies of the past, the development in this field un¬der¬lines the need for continued and strengthen public support to the sick, dis¬abled and mentally retarded.

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