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Ewa-Lena Bratt
Vicedekan
Sahlgrenska akademinProfessor/sjuksköterska
Vård vid långvariga tillståndOm Ewa-Lena Bratt
Ewa-Lena Bratt är professor i omvårdnad med en specialisering inom övergångar i hälso- och sjukvård, med särskilt fokus på unga personer med långvariga sjukdomstillstånd. Hon har en bakgrund som legitimerad sjuksköterska med specialistutbildning inom hälso- och sjukvård för barn och ungdomar, och över 30 års erfarenhet av arbete inom barnsjukvård, främst med barn och ungdomar med medfödda hjärtfel.
Forskningsinriktning
Ewa-Lena är forskargruppsledare för gruppen ”Vård vid övergångar inom hälso- och sjukvård”, som fokuserar på att förbättra vården för patienter under övergångar mellan olika vårdnivåer och vårdgivare. Hon är även en av de ledande forskarna inom det nationella forskningsprojektet Stepstones, som syftar till att utveckla och utvärdera personcentrerade övergångsprogram. Inom ramen för detta projekt har även processutvärderingar och hälsoekonomiska analyser genomförts. Stepstones-programmet implementeras nu vid flera sjukhus runt om i Sverige och innefattar följande delprojekt:
- Stepstones – medfödda hjärtfel
- Stepstones – diabetes
- Stepstones – implementering
- Stepstones – långtidsuppföljning
- Digi-Stepstones
Utöver Stepstones leder Ewa-Lena även samarbetsprojektet Adole7C (Adolescents Receiving Continuous Care for Childhood-onset Chronic Conditions). Hon har också pågående forskningssamarbete med forskare från Göteborgs universitet, KU Leuven i Belgien och Kapstaden i Sydafrika.
Läs mer om forskargruppen här: Vård vid övergångar inom hälso- och sjukvård.
Internationalisering
I sin roll som vice dekan för internationalisering och samverkan vid Sahlgrenska akademin arbetar Ewa-Lena aktivt med att stärka internationella samarbeten och utbyten. Hon är ledamot i flera viktiga forskarutbildnings- och forskningskommittéer, inklusive FUS (Forskarutbildningsutskottet) och FOS (Forskningsutskottet). I maj 2024 blev hon utsedd till hedersprofessor Department of Paediatrics and Child Health, University of Cape Town, Sydafrika.
Undervisning
Ewa-Lena undervisar och handleder på grundnivå, avancerad nivå och forskarnivå. Hon spelar en central roll i utvecklingen av undervisningsmetoder för att integrera internationella sjuksköterskestudenter i kursen om komplexa vårdsituationer, vilket stärker den globala aspekten i sjuksköterskeprogrammet vid Sahlgrenska akademin, Göteborgs universitet.
Klinisk verksamhet
Sedan 1998 har Ewa-Lena arbetat kliniskt med barn och ungdomar med medfödda hjärtfel. Hennes professur är förenad med en tjänst som specialistsjuksköterska (20%) vid Barnhjärtcentrum, Drottning Silvias barnsjukhus, Sahlgrenska universitetssjukhuset. I december 2021 utnämndes hon även till universitetssjukhusöversjuksköterska vid Sahlgrenska universitetssjukhuset.
Presentation:
-
Which factors affect post-transfer gaps in follow-up care? A qualitative study of the insights of healthcare providers in Sweden and
Belgium
Sandra Skogby, Eva Goossens, Bengt Johansson, Philip Moons, Ewa-Lena Bratt
BMJ OPEN - 2024 -
Taking Charge of Your Health: Enabling Patient Empowerment in Cardiovascular
Care.
Mariela Acuña Mora, Ewa-Lena Bratt, Markus Saarijärvi
European journal of cardiovascular nursing - 2024 -
Development and psychometric evaluation of TEXP-Q: a questionnaire measuring transition and transfer experiences in emerging adults with type 1
diabetes.
Mikaela Vallmark, Anna Lena Brorsson, Carina Sparud Lundin, Ewa-Lena Bratt, Philip Moons, Markus Saarijärvi, Mariela Acuña Mora
Journal of patient-reported outcomes - 2023 -
Effectiveness of the STEPSTONES Transition Program for Adolescents With Congenital Heart Disease-A Randomized Controlled
Trial.
Ewa-Lena Bratt, Mariela Acuña Mora, Carina Sparud Lundin, Markus Saarijärvi, Åsa Burström, Sandra Skogby, Eva Fernlund, Shalan Fadl, Annika Rydberg, Katarina Hanseus, Kalliopi Kazamia, Philip Moons
The Journal of adolescent health : official publication of the Society for Adolescent Medicine - 2023 -
Feasibility of a digital group treatment for adolescents with chronic disease and their
parents
Elisabet Bergenmar Ivarsson, Sandra Weineland, Ewa-Lena Bratt, Linde Scholten, Sandra Buratti
European Paediatric Psychology Conference (EPPC) - 2023 -
Early Access to Blended Psychological Treatment for Paediatric Functional Abdominal
Pain
Emma Ramsay Milford , Sandra Buratti, Ewa-Lena Bratt, Natoshia Cunningham, Åsa Nilses, Sandra Weineland
European Paediatric Psychology Conference (EPPC), Stirling, Scotland - 2023 -
Early Access to Blended Psychological Treatment for Paediatric Functional Abdominal Pain: Preliminary qualitative results of a mixed methods
study
Emma Ramsay Milford , Sandra Buratti, Ewa-Lena Bratt, Natoshia Cunningham, Åsa Nilses, Sandra Weineland
SweSRII – The 12th Swedish Congress on Internet Interventions - 2023 -
The longitudinal association between patient empowerment and patient-reported outcomes: What is the direction of
effect?
Mariela Acuña Mora, Carina Sparud Lundin, Eva Fernlund, Shalan Fadl, Kazamia Kalliopi, Annika Rydberg, Åsa Burström, Katarina Hanseus, Philip Moons, Ewa-Lena Bratt
PloS one - 2022 -
Adolescents With Congenital Heart Disease: What Do They Know About Reproductive Health and
Risks?
Åsa Burström, Mariela Acuña Mora, Carina Sparud Lundin, Philip Moons, Ewa-Lena Bratt
Journal of Cardiovascular Nursing - 2022 -
Implementation fidelity of a transition program for adolescents with congenital heart disease: the STEPSTONES
project
Markus Saarijärvi, Lars Wallin, Philip Moons, Hanna Gyllensten, Ewa-Lena Bratt
BMC Health Services Research - 2022 -
Definitions, instruments and correlates of patient empowerment: A descriptive
review.
Mariela Acuña Mora, Carina Sparud Lundin, Philip Moons, Ewa-Lena Bratt
Patient education and counseling - 2022 -
Health care experiences and aspects of diabetes management in
the transition to adulthood in emerging adults with type
1
diabetes.
Carina Sparud Lundin, Mikaela Hällström, Ewa-Lena Bratt, Mariela Acuña Mora, Markus Saarijärvi, Philip Moons, Anna Lena Brorsson
48 Annual Conference, International Society for Pediatric and Adolescent Diabetes (ISPAD) 13-16 October, 2022, Abu Dhabi, Förenade Arabemiraten. - 2022 -
A transition program is effective in improving adolescents’ knowledge about their congenital heart disease: The Stepstones-CHD
trial
Ewa-Lena Bratt, Mariela Acuña Mora, Carina Sparud Lundin, Sandra Skogby, Asa Buström, Markus Saarijärvi, Katarina Hanseus, Annika Rydberg, Shalan Fadl, Eva Fernlund, Kalliopi Kazamia, Philip Moons
Arquivos Brasileiros de Cardiologica 2022; 119 (4 Suppl.1): 43 - 2022 -
Adolescents with CHD – Is their illness perception impacting quality of
life?
Asa Buström, Carina Sparud Lundin, Philip Moons, Ewa-Lena Bratt, Mariela Acuña Mora
Cardiology in the Young 2022; 32 (suppl 2): S272-S273. - 2022 -
The STEPSTONES transition program for adolescents with congenital heart disease is effective in improving patient empowerment: a randomized controlled
trial
Ewa-Lena Bratt, Mariela Acuña Mora, Carina Sparud Lundin, Markus Saarijärvi, Åsa Burström, Sandra Skogby, Eva Fernlund, Shalan Fadl, Annika Rydberg, Katarina Hanseus, Kazamia Kalliopi, Philip Moons
ESC 2022 - 2022 -
Cost-effectiveness of a transition program for adolescents with congenital heart disease: The Stepstones
project
Markus Saarijärvi, Ewa-Lena Bratt, Philip Moons, Hanna Gyllensten
55th annual meeting for European Paediatric and Congenital Cardiology AEPC. Geneva. May 25-28th - 2022 -
Discontinuation of follow-up care for young people with complex chronic conditions: conceptual definitions and operational
components
Sandra Skogby, Ewa-Lena Bratt, Bengt Johansson, Philip Moons, Eva Goossens
BMC Health Services Research - 2021 -
When face-to-face interviews are not possible: Tips and tricks for video, telephone, online chat, and email interviews in qualitative
research
Markus Saarijärvi, Ewa-Lena Bratt
European Journal of Cardiovascular Nursing - 2021 -
Mechanisms of Impact and Experiences of a Person-Centred Transition Programme for Adolescents With Chd: The Stepstones
Project
Markus Saarijärvi, Lars Wallin, Philip Moons, Hanna Gyllensten, Ewa-Lena Bratt
BMC Health Services Research - 2021 -
Transition to adulthood and transfer to adult care of adolescents with congenital heart disease: a global consensus statement of the ESC Association of Cardiovascular Nursing and Allied Professions (ACNAP), the ESC Working Group on Adult Congenital Heart Disease (WG ACHD), the Association for European Paediatric and Congenital Cardiology (AEPC), the Pan-African Society of Cardiology (PASCAR), the Asia-Pacific Pediatric Cardiac Society (APPCS), the Inter-American Society of Cardiology (IASC), the Cardiac Society of Australia and New Zealand (CSANZ), the International Society for Adult Congenital Heart Disease (ISACHD), the World Heart Federation (WHF), the European Congenital Heart Disease Organisation (ECHDO), and the Global Alliance for Rheumatic and Congenital Hearts (Global
ARCH)
Philip Moons, Ewa-Lena Bratt, J De Backer, Eva Goossens, Tim Hornung, O Tutarel, Liesl Zühlke , A Jairo Araujo, Edward Callus, H Gabriel, S Nauman, S Karen, Amy Verstappen, Y Hsiao-Ling , C Thomet
European Heart Journal - 2021 -
Discontinuity of Cardiac Follow-Up in Young People With Congenital Heart Disease Transitioning to Adulthood: A Systematic Review and
Meta-Analysis.
Philip Moons, Sandra Skogby, Ewa-Lena Bratt, Liesl Zühlke, Ariane Marelli, Eva Goossens
Journal of the American Heart Association - 2021 -
Qualitative study of facilitators and barriers for continued follow-up care as perceived and experienced by young people with congenital heart disease in
Sweden
Sandra Skogby, Eva Goossens, Bengt Johansson, Philip Moons, Ewa-Lena Bratt
BMJ Open - 2021 -
Patient empowerment: a way to improve the communication between young persons and healthcare
providers
Mariela Acuña Mora, Carina Sparud Lundin, Philip Moons, Ewa-Lena Bratt
European Heart Journal; 42 (Suppl 1): 3120 - 2021 -
Så ska övergången till vuxenvården bli bättre för
unga
Markus Saarijärvi, Ewa-Lena Bratt
Hjärtebarnet - 2021 -
Övergångar i hälso- och sjukvård - ett livsloppsperspektiv och organisatoriska
aspekter
-
Participants and non-participants – factors affecting representativeness and reach in randomized controlled trials evaluating the effectiveness of complex
interventions
Markus Saarijärvi, Lars Wallin, Philip Moons, Hanna Gyllensten, Ewa-Lena Bratt
Nordic Conference in Nursing Research, Copenhagen 4-6th October 2021 - 2021 -
Factors perceived by young adults with congenital heart disease to affect
continuing follow-up care after
transfer
Sandra Skogby, Eva Goossens, Bengt Johansson, Philip Moons, Ewa-Lena Bratt
Association for European Paediatric and Congenital Cardiology - AEPC 2021, Gothenburg - 2021 -
Vården av unga med långvariga tillstånd: Skarven i överföringen till
vuxensjukvård/livet.
Ewa-Lena Bratt, Carina Sparud Lundin
Barnläkaren - 2021 -
Factors affecting adolescents’ participation in randomized controlled trials evaluating the effectiveness of healthcare interventions: the case of the STEPSTONES
project
Markus Saarijärvi, Lars Wallin, Philip Moons, Hanna Gyllensten, Ewa-Lena Bratt
BMC Medical Research Methodology - 2020 -
Self-Perceived Health Status and Sense of Coherence in Children With Type 1 Diabetes in the West Bank,
Palestine.
Kawther Elissa, Ewa-Lena Bratt, Åsa B. Axelsson, Salam Khatib, Carina Sparud Lundin
Journal of transcultural nursing : official journal of the Transcultural Nursing Society - 2020 -
Randomised controlled trial of a person-centred transition programme for adolescents with type 1 diabetes (STEPSTONES-DIAB): a study
protocol
Anna Lena Brorsson, Ewa-Lena Bratt, Philip Moons, A. Ek, E. Jelleryd, T. Torbjornsdotter, Carina Sparud Lundin
BMJ Open - 2020 -
Process evaluation of complex cardiovascular interventions: How to interpret the results of my
trial?
Markus Saarijärvi, Lars Wallin, Ewa-Lena Bratt
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2020 -
Unga med hjärtfel och övergången till
vuxenliv.
Ewa-Lena Bratt, Annika Rydberg
Barnläkaren - 2020 -
Personcentrering inom hälso- och
sjukvård
Ewa-Lena Bratt, Stefan Nilsson
Liber - 2020 -
Empowering young persons during the transition to
adulthood
Mariela Acuña Mora, Carina Sparud Lundin, Ewa-Lena Bratt, Philip Moons
Transition from Pediatric to Adult Healthcare Services for Young Adults with Long-Term Conditions: An International Perspective on Nurses Roles and Interventions - 2020 -
Outpatient volumes and medical staffing resources as predictors for continuity of follow-up care during transfer of adolescents with congenital heart
disease.
Sandra Skogby, Philip Moons, Bengt Johansson, Jan Sunnegårdh, Christina Christersson, Edit Nagy, Per Winberg, Katarina Hanséus, Aleksandra Trzebiatowska-Krzynska, Shalan Fadl, Eva Fernlund, Kalliopi Kazamia, Annika Rydberg, Liesl Zühlke, Eva Goossens, Ewa-Lena Bratt
International journal of cardiology - 2020 -
Empowering young persons with congenital heart disease: Using intervention mapping to develop a transition program - the STEPSTONES
project.
Mariela Acuña Mora, Markus Saarijärvi, Carina Sparud Lundin, Philip Moons, Ewa-Lena Bratt
Journal of pediatric nursing - 2020 -
Processutvärdering av ett personcentrerat övergångsprogram för ungdomar med medfödda hjärtfel i övergång till vuxenlivet –
STEPSTONES-projektet
Markus Saarijärvi, Lars Wallin, Hanna Gyllensten, Philip Moons, Ewa-Lena Bratt
Centrum för personcentrerad vård (GPCC) 10-årsjubileumskonferens 6-7 feb 2020, Konferenscentrum Wallenberg vid Sahlgrenska akademin i Göteborg - 2020 -
Ready for Transfer to Adult Care? A Triadic Evaluation of Transition Readiness in Adolescents With Congenital Heart Disease and Their
Parents
A. Burstrom, Mariela Acuña Mora, M. Ojmyr-Joelsson, Carina Sparud Lundin, A. Rydberg, K. Hanseus, B. Frenckner, M. Nisell, Philip Moons, Ewa-Lena Bratt
Journal of Family Nursing - 2019 -
The Scope of Research on Transfer and Transition in Young Persons With Chronic
Conditions
Mariela Acuña Mora, Markus Saarijärvi, Philip Moons, Carina Sparud Lundin, Ewa-Lena Bratt, Eva Goossens
Journal of Adolescent Health - 2019 -
Parental reactions, distress, and sense of coherence after prenatal versus postnatal diagnosis of complex congenital heart
disease
Ewa-Lena Bratt, Stina Järvholm, Britt-Marie Ekman-Joelsson, Antje Johannsmeyer, Sven-Åke Carlsson, Lars-Åke Mattsson, Mats Mellander
Cardiology in the Young - 2019 -
Transition program for adolescents with congenital heart disease in transition to adulthood: protocol for a mixed-method process evaluation study (the STEPSTONES
project).
Markus Saarijärvi, Lars Wallin, Philip Moons, Hanna Gyllensten, Ewa-Lena Bratt
BMJ open - 2019 -
Patient empowerment and its correlates in young persons with congenital heart
disease
Mariela Acuña Mora, Carina Sparud Lundin, Åsa Burström, Katarina Hanseus, Annika Rydberg, Philip Moons, Ewa-Lena Bratt
European Journal of Cardiovascular Nursing - 2019 -
Parental Uncertainty About Transferring Their Adolescent with Congenital Heart Disease to Adult
Care.
Åsa Burström, Mariela Acuña Mora, Maria Öjmyr-Joelsson, Carina Sparud Lundin, Annika Rydberg, Katarina Hanseus, Björn Frenckner, Margret Nisell, Philip Moons, Ewa-Lena Bratt
Journal of advanced nursing - 2019 -
In a prospective randomized study in familial hypertrophic cardiomyopathy, metoprolol maintains exercise-performance, with lower myocardial oxygen-cost, and prevents deterioration in
exercise-ability
Ingegerd Östman-Smith, Pari Allahyari, Ewa-Lena Bratt, Magnus Pettersson
European Society of Cardiology-ESC congress. Paris, France31 Aug-4 Sept 2019. - 2019 -
ADHD Symptoms as a Potential Driver to Cannabis Use in Young Persons With Complex Congenital Heart
Defects.
Sandra Skogby, Ewa-Lena Bratt, Åsa Burström
The Canadian journal of cardiology - 2019 -
Parents’ experience of uncertainty related to transfer from pediatrics to adult care in adolescents with congenital heart
disease
Åsa Burström, Mariela Acuña Mora, Carina Sparud Lundin, Annika Rydberg, Katarina Hanseus, Philip Moons, Ewa-Lena Bratt
Abstract book of the 99th Berzelius conference, 21-22 February 2019, Stockholm, Sweden, p29-30. - 2019 -
Unraveling the role of healthcare system factors for continuing care of adolescents with congenital or rheumatic heart disease: Rationale and methods of the international
Adole7C-project
Ewa-Lena Bratt, Sandra Skogby, Liesl Zühlke, Bongani Mayosi, Bengt Johansson, Mikael Dellborg, Christina Christersson, Edit Nagy, Per Winberg, Ulf Thilén, Katarina Hanseus, Aleksandra Krzynska, Shalan Fadi, Eva Fernlund, Kalliopi Kazamia, Annika Rydberg, Jan Sunnegårdh, Eva Goossens, Philip Moons
Abstract book of the 99th Berzelius conference, 21-22 February 2019, Stockholm, Sweden, p31-32. - 2019 -
Transition program for adolescents with congenital heart disease in transition to adulthood: protocol and rationale for a mixed-methods process evaluation study (the STEPSTONES
project)
Markus Saarijärvi, Lars Wallin, Philip Moons, Hanna Gyllensten, Ewa-Lena Bratt
Knowledge Utilization (KU) Colloquium 2019, 25-28 juni, Montebello, Quebec, Canada - 2019 -
Transition program to empower adolescents with chronic conditions in their transition to adulthood: methods and rationale for the STEPSTONES
project
Markus Saarijärvi, Mariela Acuña Mora, Carina Sparud Lundin, Lars Wallin, Hanna Gyllensten, Ewa-Lena Bratt, Philip Moons
Forte Talks, 26-27 mars 2019, Stockholm - 2019 -
Lack of Knowledge about Contraception and Pregnancy in Adolescent Girls with Congenital Heart Disease – There is Room for
Improvement.
Åsa Burström, Mariela Acuña Mora, Carina Sparud Lundin, Annika Rydberg, Katarina Hanseus, Philip Moons, Ewa-Lena Bratt
53rd Annual Meeting of the Association for European Paediatric and Congenital Cardiology (AEPC) 15-18 May 2019, Seville, Spain. - 2019 -
Parents’ experience of uncertainty related to transfer from pediatrics to adult care in adolescents with congenital heart
disease
Åsa Burström, Mariela Acuña Mora, Carina Sparud Lundin, Annika Rydberg, Katarina Hanseus, Philip Moons, Ewa-Lena Bratt
SAHM Society of Adolescent and Health Medicine. 2019 Annual Meeting Psychological Well-being: International Transcultural Perspectives. March 6-9, 2019 Washington, USA. - 2019 -
Reactions of Mothers and Fathers after Prenatal or Postnatal Diagnosis of Congenital Heart
Disease.
Frida Grankvist Forsman, Stina Järvholm, Britt-Marie Ekman-Joelsson, Lars-Åke Mattsson, Mats Mellander, Ewa-Lena Bratt
53rd Annual Meeting of the Association for European Paediatric and Congenital Cardiology (AEPC) 15-18 May 2019, Seville, Spain. - 2019 -
Person-centered and Empowering Care for Adolescents with Chronic Conditions during Transition to
Adulthood
Ewa-Lena Bratt, Mariela Acuña Mora, Markus Saarijärvi, Sandra Skogby, Anna-Lena Brorsson, Carina Sparud Lundin
SAHM - Society of Adolescent and Health Medicine Annual meeting March 6-9 2019, Washington, US. - 2019 -
Urgency for Clarification of Concepts and Definitions related to Discontinuation of Follow-Up Care for Young People with Complex Chronic
Conditions.
Sandra Skogby, Philip Moons, Ewa-Lena Bratt, Bengt Johansson, Eva Goossens
International Scientific Nursing and Midwifery Congress 2019, Leuven, Belgium 4-6 February 2019 - 2019 -
Do not forget the parents—Parents' concerns during transition to adult care for adolescents with congenital heart
disease
Ewa-Lena Bratt, Åsa Burström, Katarina Hanseus, Annika Rydberg, Malin Berghammer
Child Care Health and Development - 2018 -
Patient empowerment in young persons with chronic conditions: Psychometric properties of the Gothenburg Young Persons Empowerment Scale
(GYPES).
Mariela Acuña Mora, Koen Luyckx, Carina Sparud Lundin, Mariëlle Peeters, AnneLoes van Staa, Jane Sattoe, Ewa-Lena Bratt, Philip Moons
PloS one - 2018 -
Adolescents with congenital heart disease own beliefs about their illness: illness perception and potential
correlates
Mariela Acuña Mora, Åsa Burström, Carina Sparud Lundin, Katarina Hanseus, Annika Rydberg, Philip Moons, Ewa-Lena Bratt
European Society of Cardiology Congress - 2018 -
Parental Psychological Distress after Prenatal versus Postnatal Diagnosis of Complex Congenital Heart
Disease
Mats Mellander, Stina Järvholm, Britt-Marie Ekman-Joelsson, Antje Johannsmeyer, Sven-Åke Carlsson, Lars-Åke Mattsson, Ewa-Lena Bratt
52nd Annual Meeting of the Association for European Paediatric and Congenital Cardiology. 9-12 May. Athens, Greece. - 2018 -
Struggling and Overcoming Daily Life Barriers Among Children With Congenital Heart Disease and Their Parents in the West Bank,
Palestine
Kawther Elissa, Carina Sparud Lundin, Åsa B. Axelsson, Salam Khatib, Ewa-Lena Bratt
Journal of Family Nursing - 2018 -
Ready for the transfer to adult care—factors associated with transition readiness in adolescents with congenital heart
disease
Åsa Burström, Mariela Acuña Mora, Carina Sparud Lundin, Maria Öjmyr Joelsson, Björn Frenckner, Margret Nisell, Annika Rydberg, Philip Moons, Ewa-Lena Bratt
52nd Annual Meeting of the Association for European Paeditric and Congenital Cardiology. 9-12 May. Athens, Greece. - 2018 -
Överföring från barnsjukvård till vuxensjukvård - ungdomar med medfödda
hjärtfel
Ewa-Lena Bratt
Barnveckan 2018 23-26 april. Västerås - 2018 -
Successful transfer to adult care: A nationwide study in patients with complex congenital heart lesions in
Sweden
Sandra Skogby, Philip Moons, Bengt Johansson, Christina Christersson, Mikael Dellborg, Shalan Fadl, Eva Fernlund, Katarina Hanseus, Kalliopi Kazamia, Aleksandra Krzynska, Edit Nagy, Annika Rydberg, Jan Sunnegårdh, Ulf Thilen, Per Winberg, Eva Goossens, Ewa-Lena Bratt
Association for European Paediatric and Congenital Cardiology - AEPC 2018, Aten - 2018 -
Betydelsen av Empowerment hos unga med långvariga sjukdomstillstånd vid
övergången till vuxenlivet och överföring till vuxensjukvården- ett
doktorandprojekt
Mariela Acuña Mora, Carina Sparud Lundin, Philip Moons, Ewa-Lena Bratt
Sjuksköterskedagarna - 2018 -
Unraveling the role of healthcare system factors for continuing care of adolescents with congenital or rheumatic heart disease: Rationale and methods of the international
Adole7C-project
Ewa-Lena Bratt, Liesl Zühlke, Bongani Mayosi, Sandra Skogby, Alexia Joachim, Samkelo Jiyana, Thabani Msomi, Lungile Pepeta, Philip Moons
19th Annual South African Heart Association Congress. 4-7 Okt 2018. Suncity, South Africa. - 2018 -
Transition Into Adulthood �- Health Care Needs Of Adolescents With Congenital Heart
Disease
Ewa-Lena Bratt
52nd Annual Meeting of the Association for the European Paediatric and Congenital Cardiology. 9-12 May, Athens, Greece. - 2018 -
Borttappad i
vården
Sandra Skogby, Philip Moons, Ewa-Lena Bratt, Bengt Johansson, Eva Goossens
Nationella utbildningsdagar för vårdprofessioner inom kardiologi VIC - Medfödda hjärtfel "Vårdens framgångar ger nya möjligheter och utmaningar" - 2018 -
Scoping the field of transfer and transition in young persons with cardiovascular
conditions
Markus Saarijärvi, Mariela Acuña Mora, Ewa-Lena Bratt, Carina Sparud Lundin, Philip Moons, Eva Goossens
EuroHeartCare 2018, Dublin - 2018 -
STEPSTONES - pågående studie för att förbättra övergången till vuxenlivet för ungdomar med medfödda
hjärtfel
Mariela Acuña Mora, Markus Saarijärvi, Ewa-Lena Bratt
Hjärtebarnet - 2018 -
Mapping the field: scoping reviews as a method to identify gaps in nursing
research
Mariela Acuña Mora, Markus Saarijärvi, Carina Sparud Lundin, Ewa-Lena Bratt, Philip Moons, Eva Goossens
Nordic Conference of Nursing Research 2018 - 2018 -
Adolescents with congenital heart disease: their opinions about the preparation for transfer to adult
care
Åsa Burström, Ewa-Lena Bratt, Björn Frenckner, Margret Nisell, Katarina Hanseus, Annika Rydberg, Maria Öjmyr-Joelsson
European Journal of Pediatrics - 2017 -
Person-centred transition programme to empower adolescents with congenital heart disease in the transition to adulthood: a study protocol for a hybrid randomised controlled trial (STEPSTONES
project)
Mariela Acuña Mora, Carina Sparud Lundin, Ewa-Lena Bratt, Philip Moons
BMJ Open - 2017 -
The STEPSTONES project-Effectiveness of a transition program to empower adolescents with congenital heart disease in the transition to
adulthood
Ewa-Lena Bratt, Carina Sparud Lundin, Mariela Acuña Mora, Philip Moons
ISTAR Konferens - 2017 -
Sociocultural Beliefs And Social Pressure In Everyday Life Of Children Living With Congenital Heart Disease In The Palestinian West
Bank.
Kawther Elissa, Carina Sparud Lundin, Åsa B. Axelsson, Salam Khatib, Ewa-Lena Bratt
7th World Congress of Pediatric Cardiology and Cardiac Surgery (WCPCCS), July 16 - 21, 2017, Barcelona, Spain - 2017 -
Level of empowerment and its correlates in young persons with congenital heart
disease
Mariela Acuña Mora, Carina Sparud Lundin, Åsa Burström, Katerina Hanseus, Annika Rydberg, Philip Moons, Ewa-Lena Bratt
European Heart Journal. 38 (Suppl.1), ehx502.P1517 - 2017 -
Empowerment in congenital heart disease: psychometric properties of the Gothenburg Young Persons Empowerment Scale
(GYPES)
Mariela Acuña Mora, Carina Sparud Lundin, Koen Luyckx, Ewa-Lena Bratt, Philip Moons
European Journal of Cardiovascular Nursing. Vol 16, Issue 1_suppl. - 2017 -
Health care providers' attitudes towards transfer and transition in young persons with long term illness- a web-based
survey.
Carina Sparud Lundin, Malin Berghammer, Philip Moons, Ewa-Lena Bratt
BMC health services research - 2017 -
Health Care Needs Of Adolescents With Congenital Heart Disease - Transition Into
Adulthood
Ewa-Lena Bratt
European Society of Cardiology congress, Barcelona, Spain. 26-30 Aug. - 2017 -
Readiness for transfer in adolescents with congenital heart
disease
Åsa Burström, Mariela Acuña Mora, Carina Sparud Lundin, Katarina Hanseus, Annika Rydberg, M Ojmyr-Joelsson, M Nisell, B Frenckner, Philip Moons, Ewa-Lena Bratt
Abstract Book of World Congress on Pediatric Cardiology and Cardiac Surgery 2017, p 806 - 2017 -
Challenges in Parenting a Child with Heart
Disease
Ewa-Lena Bratt
7th World Congress of Pediatric Cardiology and Cardiac Surgery (WCPCCS), July 16 - 21, 2017, Barcelona, Spain - 2017 -
Using intervention mapping in developing complex nursing interventions- the STEPSTONES transition program for adolescents with chronic
conditions
Mariela Acuña Mora, Philip Moons, Carina Sparud Lundin, Ewa-Lena Bratt
The Future Direction of European Nursing nd Nursing Research - 2017 -
Societal Norms and Conditions and Their Influence on Daily Life in Children With Type 1 Diabetes in the West Bank in
Palestine
Kawther Elissa, Ewa-Lena Bratt, Åsa B. Axelsson, Salam Kathib, Carina Sparud Lundin
Journal of Pediatric Nursing - 2017 -
Assessing the level of evidence on transfer and transition in young people with chronic conditions: protocol of a scoping
review
Mariela Acuña Mora, Philip Moons, Carina Sparud Lundin, Ewa-Lena Bratt, Eva Goossens
Systematic Reviews - 2016 -
Hybrid experimental design: A suitable design to tackle contamination of control
groups
Mariela Acuña Mora, Carina Sparud Lundin, Ewa-Lena Bratt, Philip Moons
Nordic Conference in Nursing Research: Methods and Networks for the Future, June 15-17, Stockholm - 2016 -
Responsibility, knowledge and trust – Important aspects in the preparation to the transfer to adult
care
Åsa Burström, Ewa-Lena Bratt, Margret Nisell, Annika Rydberg, Katarina Hanseus, Maria Öjmyr Joelsson
50th Annual Meeting of the Association for European Paediatric and Congenital Cardiology (AEPC). 1-4 June Rome Italy - 2016 -
Adolescents with congenital heart disease - Parent’s perceptions and expectations about transition and transfer to adult
care
Ewa-Lena Bratt, Åsa Burström, Katarina Hanseus, Annika Rydberg, Malin Berghammer
46th Nordic Meeting in Paediatric Cardiology. 21-23 September 2016. Båstad, Sweden - 2016 -
Ungdomar med kroniska sjukdomar och deras överföring från barn- till vuxensjukvård-
STEPSTONES.
Ewa-Lena Bratt, Carina Sparud Lundin
Barnbladet - 2016 -
Adolescents With Congenital Heart Disease and Their Parents: Needs Before Transfer to Adult
Care
Åsa Burström, Maria Öjmyr-Joelsson, Ewa-Lena Bratt, Bo Lundell, Margret Nisell
Journal of Cardiovascular Nursing, Vol. 31, No. 5, pp 399-404 - 2016 -
Special diets to reduce pleural effusion after cardiac surgery in children with complex heart disease - effect or
not?
Ewelina Wadman, Mia Sörensen, Ewa-Lena Bratt
46th Nordic Meeting in Paediatric Cardiology, 21-23 September 2016. Båstad, Sweden - 2016 -
Stepstones - the Swedish transition and GUCH
project
Ewa-Lena Bratt
46th Nordic Meeting in Paediatric Cardiology, 21-23 September 2016. Båstad, Sweden - 2016 -
Effectiveness of a transition program to empower adolescents with congenital heart disease in the transition to adulthood: Rationale and methods of the STEPSTONES-CHD
project
Philip Moons, Carina Sparud Lundin, Mariela Acuña Mora, Ewa-Lena Bratt
46th Nordic Meeting in Paediatric Cardiology, 21-23 September 2016. Båstad, Sweden - 2016 -
Youth hospitalized in a paediatric ward - experiences of adolescents with congenital heart
disease
Jenny Högstedt, Josefin Meldo, Ewa-Lena Bratt
46th Nordic Meeting in Paediatric Cardiology, 21-23 September 2016. Båstad, Sweden - 2016 -
Effectiveness of a transition program to empower adolescents with congenital heart disease in the transition to adulthood: Rationale and methods of the STEPSTONES-ConHD
project
Philip Moons, Carina Sparud Lundin, Mariela Acuña Mora, Ewa-Lena Bratt
Cardiology in the Young. 50th Annual Meeting of the Association for European Paediatric and Congenital Cardiology, Rome, Italy, June 1–4, 2016. - 2016 -
Wellbeing in couples expecting a child with a heart
disease
Ewa-Lena Bratt
50th Annual meeting of the Association for European Paediatric and Congenital Cardiology. June 1-4 2016. Rome, Italy - 2016 -
Parenting during
transition
Ewa-Lena Bratt
Annual Meeting of the Association for European Paediatric and Congenital Cardiology. June 1-4, 2016. Rome, Italy. - 2016 -
Young people with Congenital Heart Disease - how to prepare for adult care - their own
perspective
Åsa Burström, Ewa-Lena Bratt, Margret Nisell, Björn Frenckner, Maria Öjmyr-Joelsson
Cardiology in the Young. 49th Annual Meeting of the Association for European Paediatric and Congenital Cardiology 20-23 May 2015. - 2015 -
Continuing pregnancy following a prenatal diagnosis of a cardiac defect: What support do parents
need?
Ewa-Lena Bratt, Stina Järvholm, Britt-Marie Ekman-Joelsson, Antje Johannsmeyer, Sven-Åke Carlsson, Lars-Åke Mattsson, Mats Mellander
Cardiology 2015. 18th Annual Update on Pediatroc and Congenital Cardiovascular Disease. Challenges and Dilemmas. Feb 11-15, 2015. Scottsdale, Arizona, US. - 2015 -
Från barn till vuxen - pågående forskningsprojekt om unga personer med långvariga
sjukdomstillstånd
Ewa-Lena Bratt
Barnbladet - 2015 -
Parent’s experiences of counselling and their need for support following a prenatal diagnosis of congenital heart disease - a qualitative study in a Swedish
context
Ewa-Lena Bratt, Stina Järvholm, Britt-Marie Ekman-Joelsson, Lars-Åke Mattsson, Mats Mellander
BMC Pregnancy and Childbirth - 2015 -
Patient-Reported Health in Young People With Congenital Heart Disease Transitioning to
Adulthood
Ewa-Lena Bratt, Koen Luyckx, Eva Goossens, Werner Budts, Philip Moons
Journal of Adolescent Health - 2015 -
Att vänta barn med
hjärtfel
Ewa-Lena Bratt
Hjärtebarnet - 2015 -
Transfer to Adult Care—Experiences of Young Adults with Congenital Heart
Disease
Ann Asp, Ewa-Lena Bratt, Ann-Chatrine Bramhage
Journal of Pediatric Nursing : Nursing Care of Children and Families - 2015 -
New kid on the block? Community nurses' experiences of caring for sick children at
home.
Samuelsson Sarah, Charlotta Willen, Ewa-Lena Bratt
Journal of Clinical Nursing - 2015 -
Prenatal diagnosis of CHD - how to improve parental support during continued pregnancy and to prepare them for transfer to pediatric
care
Ewa-Lena Bratt
45th Nordic Paediatric Cardiology Meeting in Oslo. 10-11 September 2015. - 2015 -
Forty Years of Quality-of-Life Research in Congenital Heart Disease: Temporal Trends in Conceptual and Methodological
Rigor
Ewa-Lena Bratt, Philip Moons
International Journal of Cardiology - 2015 -
Adolescents with Congenital Heart Disease and their parents - transfer to adult
care
Åsa Burström, Maria Öjmyr-Joelsson, Ewa-Lena Bratt, Bo Lundell, Margret Nisell
Cardiology in the Young. Supplement S1. 49th Annual Meeting of the Association for European Paediatric and Congenital Cardiology 20-23 May 2015. - 2015 -
Conceptual and Methodological Rigor in Quality of Life Research in Congenital Heart
Disease
Ewa-Lena Bratt, Philip Moons
49th Annual Meeting of the Association for European Paediatric and Congenital Cardiology 20-23 May 2015. - 2015 -
Why is transfer to adult care so
hard?
Philip Moons, Eva Goossens, Ewa-Lena Bratt
18th Annual Update on Pediatric and Congenital Cardiovascular Disease - Challenges and Dilemmas. Feb 11-15, 2015. Scottsdale, ARizona, US. - 2015 -
Scrutinizing Patient-Reported Health Status in Young People with Congenital Heart
Disease
Ewa-Lena Bratt, Koen Luyckx, Eva Goossens, Werner Budts, Philip Moons
18th Annual Update on Pediatric and Congenital Cardiovascular Disease - Challenges and Dilemmas. Feb 11-15, 2015. Scottsdale, Arizona, US. - 2015 -
How can we improve patient knowledge in adult
patients?
Philip Moons, Eva Goossens, Ewa-Lena Bratt
49th AEPC Annual Meeting. Prague, Czech Republic (20-23 May, 2015) - 2015 -
Which education and support do couples need after a prenatal diagnosis of Congenital Heart
Disease?
Ewa-Lena Bratt, Stina Järvholm, Britt-Marie Ekman-Joelsson, Lars-Åke Mattsson, Mats Mellander
49th Annual Meeting of the Association for European Paediatric and Congenital Cardiology 20-23 May 2015. - 2015 -
Upplevelser kring överföring till vuxensjukvård - Unga vuxna med medfödda
hjärtfel
Ann Asp, Ewa-Lena Bratt, Ann-Chatrine Bramhagen
Barnveckan, 20-23 april, Stockholm - 2015 -
Effects of lifestyle changes and high-dose β-blocker therapy on exercise capacity in children, adolescents, and young adults with hypertrophic
cardiomyopathy
Ewa-Lena Bratt, Ingegerd Östman-Smith
Cardiology in the Young - 2015 -
Prenatal screening of congenital heart disease - What about the
parents?
Ewa-Lena Bratt, Sven-Åke Carlsson, Britt-Marie Ekman-Joelsson, Antje Johannsmeyer, Stina Järvholm, Lars-Åke Mattsson, Mats Mellander
XXXXIV Nordic Paediatric Cardiology Meeting in Umeå. 17-19 Sept 2014 - 2014 -
How do we improve patient
knowledge
Philip Moons, Eva Goossens, Ewa-Lena Bratt
Annual Program on Congenital Heart Disease in the Adult: An International Symposium, Cincinnati summit June 10-13, 2014 - 2014 -
Att vårda sjuka barn inom kommunal hemsjukvård - en ny
utmaning
Sarah Samuelsson, Charlotta Willén, Ewa-Lena Bratt
Sjuksköterskedagarna 2014 - 2014 -
New kid on the block? Community nurses' experiences of caring for sick children at
home
Ewa-Lena Bratt, Charlotta Willén, Sarah Samuelsson
American Academy of Nursing 2014 Transforming Health, Driving Policy Conference held from October 16 - 18 2014. Washington, USA - 2014 -
Do we need a European network in congential heart
nursing?
Ewa-Lena Bratt
48th Annual meeting of the European Association of Pediatric and Congenital Cardiology (AEPC). 23 maj 2014. Helsingfors, Finland - 2014 -
Optimal transition - nurses
view.
Ewa-Lena Bratt, Eva Goossens, Philip Moons
48th Annual meeting of the European Association of Pediatric and Congenital Cardiology (AEPC). 22 maj 2014. Helsingfors, Finland. - 2014 -
Patient education in adolescents with congenital heart disease – does a computer-based program developed for adults
work?
Anette Johansson, Susanne Sloberg, Ewa-Lena Bratt
XXXXIV Nordic Paediatric Cardiology Meeting in Umeå. 17-19 september 2014 - 2014 -
Transfer and transition in patients with congenital heart disease. What, why, when and
how?
Philip Moons, Eva Goossens, Ewa-Lena Bratt
XXXXIV Nordic Paediatric Cardiology Meeting in Umeå. 17-19 sept 2014 - 2014 -
Building up a transition program for young people with congenital heart disease: What
works?
Ewa-Lena Bratt, Eva Goossens, Philip Moons
Joint Annual Meeting of the Swiss Society of Cardiology (SSC) and the Swiss society of Cardiac and Thoracic Vascular Surgery (SSCS). 12 Juni 2014. Interlaken, Schweiz - 2014 -
Effects of life-style changes and high dose beta-blocker therapy on exercise capacity in children and young adults with hypertrophic
cardiomyopathy
Ewa-Lena Bratt, Ingegerd Östman-Smith
Nordic Pediatric Cardiology Meeting. Köpenhamn. Danmark. - 2013 -
Att skapa förutsättningar för en bra övergång från barnsjukvård till
vuxensjukvård
Malin Berghammer, Ewa-Lena Bratt
Barnbladet - 2013 -
Compliance with lifestyle recommendations in children and young adults with hypertrophic
cardiomyopathy.
Ewa-Lena Bratt, Ingegerd Östman-Smith
6th World Congress in Paediatric Cardiology & Cardiac surgery. Kapstaden, Sydafrika. - 2013 -
Quality of life in asymptomatic children and adolescents before and after diagnosis of hypertrophic cardiomyopathy through family
screening.
Ewa-Lena Bratt, Ingegerd Östman-Smith, Åsa B. Axelsson, Leeni Berntsson
Journal of clinical nursing - 2013 -
The impact of pre-symptomatic screening diagnosis of hypertrophic cardiomyopathy through family
screening
Ewa-Lena Bratt
46th Annual Meeting of the Association for European Paediatric and Congenital Cardiology (AEPC). Istanbul. Turkiet. - 2012 -
The experience of being diagnosed with hypertrophic cardiomyopathy through family screening in childhood and
adolescence
Ewa-Lena Bratt, Carina Sparud Lundin, Ingegerd Östman-Smith, Åsa B. Axelsson
Cardiology in the Young. 46th Annual Meeting of the Association for European Paediatric and Congenital Cardiology. 23-26 maj 2012. Istanbul. Turkiet. - 2012 -
The experience of being diagnosed with hypertrophic cardiomyopathy through family screening in childhood and
adolescence.
Ewa-Lena Bratt, Carina Sparud Lundin, Ingegerd Östman-Smith, Åsa B. Axelsson
Cardiology in the young - 2012 -
Diagnosis of familial asymptomatic HCM: impact of the diagnosis on quality of
life
Ewa-Lena Bratt
41st Nordic Paediatric Cardiology Meeting, Helsinki, Finland. - 2011 -
Quality of life in asymptomatic children and adolescents before and after diagnosis of hypertrophic cardiomyopathy through family
screening.
Ewa-Lena Bratt, Leeni Berntsson, Åsa B. Axelsson, Ingegerd Östman-Smith
Cardiology in the Young. 45th Annual Meeting of the Association for European Paediatric and Congenital Cardiology i Granada, Spanien. - 2011 -
Transition i
Barnsjukvård
Ewa-Lena Bratt
Barnbladet - 2011 -
Screening for Hypertrophic Cardiomyopathy in Asymptomatic Children and Adolescents. Psychosocial consequences and impact on quality of life and physical
activity.
Ewa-Lena Bratt
2011 -
Parents' experiences of having an asymptomatic child diagnosed with hypertrophic cardiomyopathy through family
screening.
Ewa-Lena Bratt, Ingegerd Östman-Smith, Carina Sparud Lundin, Åsa B. Axelsson
Cardiology in the young - 2011 -
Psychosocial consequences of diagnosis of hypertrophic cardiomyopathy in asymptomatic children through family
screening
Ewa-Lena Bratt
44th Annual Meeting of the Association for European Paediatric and Congenital Cardiology (AEPC). Innsbruck, Österrike. - 2010 -
Parents experiences of having an asymptomatic child diagnosed with hypertrophic cardiomyopathy through
family-screening.
Ewa-Lena Bratt, Ingegerd Östman-Smith, Carina Sparud Lundin, Åsa B. Axelsson
European Journal of Cardiovascular Nursing. 10th Annual Spring Meeting on Cardiovascular Nursing i Geneve, Schweiz. - 2010 -
Electrocardiographic amplitudes: a new risk factor for sudden death in hypertrophic
cardiomyopathy.
Ingegerd Östman-Smith, Aase Wisten, Eva Nylander, Ewa-Lena Bratt, Anne de-Wahl Granelli, Abderrahim Oulhaj, Erik Ljungström
European heart journal - 2010 -
Parents experiences of having an asymptomatic child diagnosed with hypertrophic cardiomyopathy through
family-screening.
Ewa-Lena Bratt, Ingegerd Östman-Smith, Åsa B. Axelsson
5 th World Congress of Paediatric Cardiology and Cardiac surgery i Cairns, Australien. www.pccs2009.com - 2009 -
Effect of high-dose betablocker therapy on exercise capacity in young adults, adolescents and children with hypertrophic
cardiomyopathy
Ewa-Lena Bratt, Anne de-Wahl Granelli, Ingegerd Östman-Smith
Scandinavian Cardiovascular Journal. IX Svenska Kardiovaskulära Vårmötet 2007 i Göteborg - 2007 -
Frequency of diagnostic ECG-abnormalities in children of parents with familial hypertrophic
cardiomyopathy
Ingegerd Östman-Smith, Ewa-Lena Bratt, Anne de-Wahl Granelli
Scandinavian Cardiovascular Journal. IX Svenska Kardiovaskulära Vårmötet 2007 i Göteborg. - 2007 -
Effect of high-dose betablocker therapy on exercise capacity in patients with hypertrophic
cardiomyopathy.
Ewa-Lena Bratt, Anne de-Wahl Granelli, Ingegerd Östman-Smith
Cardiology in the Young. 42th Annual Meeting of the Association for European Paediatric and Congenital Cardiology i Warsawa, Polen. - 2007 -
Clinically Important Differences in Accuracy of Different Pulse Oximeters in the Assessment of Children With Cyanotic Heart
Disease
Ewa-Lena Bratt, Anne de-Wahl Granelli, Ingegerd Östman-Smith
Cardiology in the Young. 41th Annual Meeting of the Association for European Paediatric and Congenital Cardiology i Basel, Österrike - 2006 -
Inadequate documentation of family history in case notes of patients with Hypertrophic Cardiomyopathy hampers detection of children at potential
risk?
Ewa-Lena Bratt, Anne de-Wahl Granelli, Ingegerd Östman-Smith
Scandinavian Cardiovasc Journal. VIII Svenska Kardiovaskulära Vårmötet i Linköping, 2006. - 2006 -
Smärtlindring med Alfentanil (Rapifen) vid borttagande av thoraxdränage hos hjärtopererade barn på
vårdavdelning
Ewa-Lena Bratt, Eva Kokinsky, Åsa Kornegård Bark
Barnbladet - 2006 -
The Use of Alfentanil During Chest tube Removal After Pediatric Cardiac Surgery in a Nursing
Ward.
Ewa-Lena Bratt, Åsa Korengård-Bark, Eva Kokinsky
The 4th World Congress of Pediatric Cardiology and Cardiac Surgery, Buenos Aires, Argentina - 2005 -
Gör det ont att opereras? Kan man mäta
smärta?
Ewa-Lena Bratt
Hjärtebarnet - 2004