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Michaela Dellenmark Blom
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Linguistic, Content and Face Validity of the Swedish Version of a Quality-of-Life Assessment for Children, Teenagers and Adults with Spina
Bifida
Michaela Dellenmark-Blom, Marie Andersson, Konrad M. Szymanski, Charlotta Levén Andréasson, Magdalena Vu Minh Arnell, Sofia Sjöström, Kate Abrahamsson
International Journal of Environmental Research and Public Health - 2024 -
The Swedish PedsQL gastrointestinal symptoms scale and symptoms module showed good psychometric
performance
Matilda Bräutigam, Kate Abrahamsson, Vladimir Gatzinsky, Robert Saalman, Lana Hadi, Suzanne Nilsson, Michaela Dellenmark-Blom
ACTA PAEDIATRICA - 2024 -
Parents' experiences of treatment and outcomes in high-grade vesicoureteral reflux in infants - One piece in the puzzle of VUR
management?
Josefin Nordenström, Sofia Sjöström, Michaela Dellenmark-Blom
JOURNAL OF PEDIATRIC UROLOGY - 2024 -
Caregiver perceptions of the impact of Dravet syndrome on the family, current supports and hopes and fears for the future: A qualitative
study
Josefin Soto Jansson, Björn Bjurulf, Michaela Dellenmark-Blom, Tove Hallböök, Colin Reilly
Epilepsy and Behavior - 2024 -
Mortality rates, cause and risk factors in people with spina bifida, register-based study over five
decades
Marie Andersson, Lana Hadi, Michaela Dellenmark-Blom, Ulla Sillén, Sofia Sjöström, Magdalena Vu Minh Arnell, Kate Abrahamsson
ACTA PAEDIATRICA - 2024 -
A Narrative Review of Patient-Reported Outcome Measures and Their Application in Recent Pediatric Surgical Research: Advancing Knowledge and Offering New Perspectives to the
Field
Olivia K. C. Spivack, Michaela Dellenmark-Blom, Jens Dingemann, Chantal A. ten Kate, Vuokko Wallace, Wichor M. Bramer, Julia H. Quitmann, Andre Rietman
EUROPEAN JOURNAL OF PEDIATRIC SURGERY - 2024 -
Diagnosis, epilepsy treatment and supports for neurodevelopment in children with Dravet Syndrome: Caregiver reported experiences and
needs
Josefin Soto Jansson, Björn Bjurulf, Michaela Dellenmark-Blom, Tove Hallböök, Colin Reilly
Epilepsy and Behavior - 2024 -
Schooling experiences in children with long-gap esophageal atresia compared with children with esophageal atresia and primary anastomosis: a Swedish
study
Michaela Dellenmark-Blom, Colin Reilly, E. Ost, Sofie Örnö Ax, J. F. Svensson, A. M. Kassa, Linus Jönsson, Kate Abrahamsson, Vladimir Gatzinsky, A. Tollne, E. Omling, P. Stenstrom, H. E. Lilja
Orphanet Journal of Rare Diseases - 2023 -
The International Network on Oesophageal Atresia (INoEA) consensus guidelines on the transition of patients with oesophageal atresia-tracheoesophageal
fistula
U. Krishnan, M. W. Dumont, H. Slater, B. D. Gold, D. Seguy, M. Bouin, R. Wijnen, L. Dall'Oglio, M. Costantini, A. C. Koumbourlis, T. A. Kovesi, M. J. Rutter, M. Soma, J. Menzies, A. Van Malleghem, N. Rommel, Michaela Dellenmark-Blom, V. Wallace, E. Culnane, G. Slater, F. Gottrand, C. Faure
Nature Reviews Gastroenterology & Hepatology - 2023 -
Establishment of a condition-specific quality-of-life questionnaire for children born with esophageal atresia aged 2-7 across 14
countries
Michaela Dellenmark-Blom, S. Witt, B. Zendejas, I. Sabolic, J. D. Porras-Hernandez, N. Durkin, S. Eaton, K. Birketvedt, A. S. Galán, K. E. Müller, A. Rozensztrauch, T. Soyer, S. Q. Li, A. Fourtaka, C. de Vos, G. Slater, A. Spoljaric, J. Bennett, R. Emblem, Z. Andrasdi, R. Smigiel, D. Patkowski, ÇU Durakbasa, M. Stilinovic, F. Gottrand, D. S. Sosa, T. Luetic, S. Gerus, S. Yang, Y. Zhao, Y. C. Gu, S. S. Li, D. Rodriguez-Alvirde, O. Kadenczki, M. Pasini, V. Wallace, A. Widenmann, F. M. Sikwete, J. S. Huang, L. M. Martínez, Kate Abrahamsson, S. Izadi, B. M. Ure, D. Sidler, J. H. Quitmann, J. Dingemann
Frontiers in Pediatrics - 2023 -
The association of feeding difficulties and generic health-related quality of life among children born with esophageal
atresia
Sofie Örnö Ax, Michaela Dellenmark-Blom, Kate Abrahamsson, Linus Jönsson, Vladimir Gatzinsky
Orphanet Journal of Rare Diseases - 2023 -
The Chinese Mandarin Version of the Esophageal-Atresia-Quality-of-Life Questionnaires for Children and Adolescents: Evaluation of Linguistic and Content
Validity.
Siqi Li, Michaela Dellenmark-Blom, Yong Zhao, Yichao Gu, Shuangshuang Li, Shen Yang, Julia H Quitmann, Jinshi Huang
International journal of environmental research and public health - 2022 -
Reliability and Validity of the Polish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and Adolescents Born with Esophageal
Atresia
A. Rozensztrauch, R. Smigiel, D. Patkowski, S. Gerus, M. Klaniewska, J. H. Quitmann, Michaela Dellenmark-Blom
International Journal of Environmental Research and Public Health - 2022 -
Postoperative morbidity and health-related quality of life in children with delayed reconstruction of esophageal atresia: a nationwide Swedish
study
Michaela Dellenmark-Blom, Sofie Örnö Ax, E. Ost, J. F. Svensson, A. M. Kassa, Linus Jönsson, Kate Abrahamsson, Vladimir Gatzinsky, P. Stenstrom, A. Tollne, E. Omling, H. E. Lilja
Orphanet Journal of Rare Diseases - 2022 -
Psychometric Performance of a Condition-Specific Quality-of-Life Instrument for Dutch Children Born with Esophageal
Atresia.
Chantal A Ten Kate, Hanneke IJsselstijn, Michaela Dellenmark-Blom, E Sofie van Tuyll van Serooskerken, Maja Joosten, René M H Wijnen, Michiel P van Wijk, On Behalf Of The Dcea Study Group
Children (Basel, Switzerland) - 2022 -
Understanding of the transition to adult healthcare services among individuals with VACTERL association in Sweden: A qualitative
study
A. M. Kassa, G. Engvall, Michaela Dellenmark-Blom, H. E. Lilja
Plos One - 2022 -
Patient-Reported Outcomes-The Value of Observational
Assessments.
Stefanie Witt, Janika Bloemeke, Monika Bullinger, Jens Dingemann, Michaela Dellenmark-Blom, Julia Quitmann
European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie - 2021 -
Parent-Reported Feeding Difficulties among Children Born with Esophageal Atresia: Prevalence and Early Risk
Factors
S. O. Ax, Kate Abrahamsson, V. Gatzinsky, L. Jonsson, Michaela Dellenmark-Blom
European Journal of Pediatric Surgery - 2021 -
Parent-child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia: a Swedish-German cross-sectional
study.
Stefanie Witt, Michaela Dellenmark-Blom, Susanne Kuckuck, Jens Dingemann, Kate Abrahamsson, Carmen Dingemann, John Chaplin, Benno Ure, Monika Bullinger, Vladimir Gatzinsky, Linus Jönsson, Julia Hannah Quitmann
Orphanet journal of rare diseases - 2021 -
Parent-Child Assessment of Strengths and Difficulties of German Children and Adolescents Born With Esophageal
Atresia.
Stefanie Witt, Jens Dingemann, Michaela Dellenmark-Blom, Julia Quitmann
Frontiers in pediatrics - 2021 -
Linguistic and content validity of the Swedish version of the PedsQL (TM) gastrointestinal symptoms scales and symptoms module for paediatric
patients
Matilda Bräutigam, Michaela Dellenmark-Blom, Vladimir Gatzinsky, J. Bergstrom, Kate Abrahamsson
Acta Paediatrica - 2021 -
Feasibility, Reliability, and Validity of the Turkish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and Adolescents Born with Esophageal
Atresia
T. Soyer, U. E. Arslan, C. U. Durakbasa, S. Aydoner, O. Boybeyi-Turer, J. H. Quitmann, J. Dingemann, Michaela Dellenmark-Blom
Turkish Journal of Gastroenterology - 2021 -
Health-Related Quality of Life in Pediatric Surgical Patients and their
Caretakers.
Jens Dingemann, Michaela Dellenmark-Blom, Julia H Quitmann
European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie - 2020 -
Health-Related Quality of Life in Patients after Repair of Esophageal Atresia: A Review of Current
Literature.
Michaela Dellenmark-Blom, Julia Quitmann, Carmen Dingemann
European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie - 2020 -
Development and Validation of Symptom Score for Total Bladder-Bowel Dysfunction: Subscales for Overactive Bladder and Dysfunctional
Voiding.
Ulla Sillén, Sofia Sjöström, Monika Doroszkiewicz, Helena Ekdahl, Michaela Dellenmark-Blom
The Journal of urology - 2020 -
Health-Related Quality of Life Assessment in Children and their Families: Aspects of Importance to the Pediatric
Surgeon
J. Bloemeke, S. Witt, M. Bullinger, J. Dingemann, Michaela Dellenmark-Blom, J. Quitmann
European Journal of Pediatric Surgery - 2020 -
Clinical Factors Affecting Condition-Specific Quality-of-Life Domains in Pediatric Patients after Repair of Esophageal Atresia: The Swedish-German EA-QOL
Study
Michaela Dellenmark-Blom, J. Quitmann, J. Dingemann, S. Witt, B. M. Ure, M. Bullinger, L. Jonsson, V. Gatzinsky, C. Dingemann
European Journal of Pediatric Surgery - 2020 -
Health-Related Quality of Life in Patients with the Bladder Exstrophy-Epispadias Complex and Relationship to Incontinence and Sexual Factors: A Review of the Recent
Literature.
Gundela Holmdahl, Michaela Dellenmark-Blom, Agneta Nordenskjöld, Sofia Sjöström
European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie - 2020 -
Children and adolescents with VACTERL association: health-related quality of life and psychological well-being in children and adolescents and their
parents.
A-M Kassa, Michaela Dellenmark-Blom, J Thorsell Cederberg, G Engvall, H Engstrand Lilja
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation - 2020 -
The prevalence and role of coping strategies in the nutritional intake of children born with esophageal atresia: a condition-specific
approach
Michaela Dellenmark-Blom, John Chaplin, J. H. Quitmann, L. Jönsson, V. Gatzinsky, J. Dingemann, Kate Abrahamsson
Diseases of the esophagus : official journal of the International Society for Diseases of the Esophagus - 2019 -
Quality of Life in Parents of Children Born with Esophageal
Atresia.
Stefanie Witt, Michaela Dellenmark-Blom, Jens Dingemann, Carmen Dingemann, Benno M Ure, Barbara Gomez, Monika Bullinger, Julia Quitmann
European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery = Zeitschrift fur Kinderchirurgie - 2019 -
Health-related quality of life experiences in children and adolescents born with esophageal atresia: A Swedish-German focus group
study.
Stefanie Witt, Michaela Dellenmark-Blom, Sofie Flieder, Jens Dingemann, Kate Abrahamsson, Linus Jönsson, Vladimir Gatzinsky, John Chaplin, Benno Ure, Carmen Dingemann, Monika Bullinger, Rachel Sommer, Julia Hannah Quitmann
Child: care, health and development - 2019 -
Generic Health-Related Quality of Life after Repair of Esophageal Atresia and Its Determinants within a German-Swedish
Cohort.
Sofie Flieder, Michaela Dellenmark-Blom, Stefanie Witt, Carmen Dingemann, Julia H Quitmann, Linus Jönsson, Vladimir Gatzinsky, John Chaplin, Barbara Gómez Dammeier, Monika Bullinger, Benno M Ure, Kate Abrahamsson, Jens Dingemann
European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie - 2019 -
Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia - a German cross-sectional
study.
Stefanie Witt, Janika Bloemeke, Monika Bullinger, Jens Dingemann, Michaela Dellenmark-Blom, Julia Quitmann
BMC pediatrics - 2019 -
Health-related quality of life among children, adolescents, and adults with bladder exstrophy–epispadias complex: a systematic review of the literature and recommendations for future
research
Michaela Dellenmark-Blom, Sofia Sjöström, Kate Abrahamsson, Gundela Holmdahl
Quality of Life Research - 2019 -
Clinical predictors and prevalence of receiving special preschool/school support in children with repaired esophageal
atresia
Michaela Dellenmark-Blom, L. Jonsson, V. Gatzinsky, Kate Abrahamsson
Journal of Pediatric Surgery - 2018 -
The Esophageal-Atresia-Quality-of-life Questionnaires: Feasibility, Validity and Reliability in Sweden and
Germany.
Michaela Dellenmark-Blom, Jens Dingemann, Stefanie Witt, Julia H Quitmann, Linus Jönsson, Vladimir Gatzinsky, John Chaplin, Monika Bullinger, Sofie Flieder, Benno M Ure, Carmen Dingemann, Kate Abrahamsson
Journal of pediatric gastroenterology and nutrition - 2018 -
Development and pilot-testing of a condition-specific instrument to assess the quality-of-life in children and adolescents born with esophageal
atresia.
Michaela Dellenmark-Blom, Kate Abrahamsson, J H Quitmann, R Sommer, S Witt, J Dingemann, S Flieder, Linus Jönsson, V Gatzinsky, M Bullinger, B M Ure, C Dingemann, John Chaplin
Diseases of the esophagus : official journal of the International Society for Diseases of the Esophagus - 2017 -
Patient-reported outcomes in children and adolescents born with esophageal
atresia
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Health-related quality of life experiences among children and adolescents born with esophageal atresia: Development of a condition-specific questionnaire for pediatric
patients.
Michaela Dellenmark-Blom, John Chaplin, Vladimir Gatzinsky, Linus Jönsson, Helena Wigert, Jeanette Apell, Ulla Sillén, Kate Abrahamsson
Journal of pediatric surgery - 2016 -
Macrophage Phenotype Is Associated With the Regenerative Response in Experimental Replacement of the Porcine
Esophagus.
Linus Jönsson, Michaela Dellenmark-Blom, Lars-Göran Friberg, Vladimir Gatzinsky, Olof Holmquist, Eva Jennische, Anders Sandin, Kate Abrahamsson
Artificial organs - 2016 -
Coping strategies used by children and adolescents born with esophageal atresia - a focus group study obtaining the child and parent
perspective
Michaela Dellenmark-Blom, John Chaplin, Linus Jönsson, Vladimir Gatzinsky, J. H. Quitmann, Kate Abrahamsson
Child Care Health and Development - 2016 -
Health-related quality of life among children, young people and adults with esophageal atresia: a review of the literature and recommendations for future
research.
Michaela Dellenmark-Blom, John Chaplin, Vladimir Gatzinsky, Linus Jönsson, Kate Abrahamsson
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation - 2015 -
Parents`experiences with neonatal home care following initial care in the neonatal intensive care unit: a phenomenological hermeneutical interview
study
Michaela Dellenmark-Blom, Helena Wigert
Jornal of Advanced Nursing - 2014 -
Parents´ experiences of communication with neonatal intensive-care unit staff: an interview
study.
Helena Wigert, Michaela Dellenmark-Blom, Kristina Bry
BMC Pediatrics - 2014 -
Becoming a parent to a child with birth asphyxia- from a traumatic delivery to living with the experience at
home
Alina Heringhaus, Michaela Dellenmark-Blom, Helena Wigert
Internationell Journal of Qualitative Studies in Health and Well-being - 2013 -
Strengths and weaknesses of parent – staff communication in the NICU: a survey
assessment
Helena Wigert, Michaela Dellenmark-Blom, Kristina Bry
BMC pediatrics - 2013