PROTECT: Person-centred care at a distance

The design is a randomized, controlled, parallel, intervention study of PCC versus traditional care alone. Patients will be recruited from primary care, in the intervention group a personal health plan will be co-created between patients and health professionals. The health plan and other communication with professionals will be performed through the EHealth platform. Follow-up will be after 3, 6, 12 and 24 months from inclusion. In addition, health-economic analyses will be performed.

Publications

Publikationer relaterade till PROTECT

1. Blanck E, Pirhonen Nørmark L, Fors A, Ekman I, Ali L, Swedberg K, Gyllensten H. Self-efficacy and healthcare costs in patients with chronic heart failure or chronic obstructive pulmonary disease. ESC Heart Fail. 2024 Feb;11(1):219-228. doi: 10.1002/ehf2.14574. Epub 2023 Nov 8. PMID: 37940106; PMCID: PMC10804184.
2. Ulin K, Fors A, Ali L, Ekman I, Jansson I. Flip focus and emphasise patient resources in person-centred care over the telephone-A retrospective descriptive study. Scand J Caring Sci. 2023 Sep;37(3):797-804. doi: 10.1111/scs.13164. Epub 2023 Mar 18. PMID: 36932728.
3. Barenfeld E, Fuller JM, Wallström S, Fors A, Ali L, Ekman I. Meaningful use of a digital platform and structured telephone support to facilitate remote person-centred care - a mixed-method study on patient perspectives. BMC Health Serv Res. 2022 Apr 4;22(1):442. doi: 10.1186/s12913-022-07831-8. PMID: 35379247; PMCID: PMC8981820.
4. Ali L, Wallström S, Fors A, Barenfeld E, Fredholm E, Fu M, Goudarzi M, Gyllensten H, Lindström Kjellberg I, Swedberg K, Vanfleteren LEGW, Ekman I. Effects of Person-Centered Care Using a Digital Platform and Structured Telephone Support for People With Chronic Obstructive Pulmonary Disease and Chronic Heart Failure: Randomized Controlled Trial. J Med Internet Res. 2021 Dec 13;23(12):e26794. doi: 10.2196/26794. PMID: 34898447; PMCID: PMC8713094.
5. Blanck E, Fors A, Ali L, Brännström M, Ekman I. Informal carers in Sweden - striving for partnership. Int J Qual Stud Health Well-being. 2021 Dec;16(1):1994804. doi: 10.1080/17482631.2021.1994804. PMID: 34720063; PMCID: PMC8567876.
6. Ali L, Wallström S, Ekman I, Swedberg K, Fors A. Effects of person-centred care via telephone on self-efficacy in patients with chronic obstructive pulmonary disease: Subgroup analysis of a randomized controlled trial. Nurs Open. 2021 Mar;8(2):927-935. doi: 10.1002/nop2.701. Epub 2020 Nov 24. PMID: 33570304; PMCID: PMC7877134.
7. Barenfeld E, Ali L, Wallström S, Fors A, Ekman I. Becoming more of an insider: A grounded theory study on patients' experience of a person-centred e-health intervention. PLoS One. 2020 Nov 23;15(11):e0241801. doi: 10.1371/journal.pone.0241801. PMID: 33226986; PMCID: PMC7682879.
8. Ali L, Wallström S, Barenfeld E, Fors A, Fredholm E, Gyllensten H, Swedberg K, Ekman I. Person-centred care by a combined digital platform and structured telephone support for people with chronic obstructive pulmonary disease and/or chronic heart failure: study protocol for the PROTECT randomised controlled trial. BMJ Open. 2020 Jul 19;10(7):e036356. doi: 10.1136/bmjopen-2019-036356. PMID: 32690519; PMCID: PMC7371144.
9. Boström E, Ali L, Fors A, Ekman I, Andersson AE. Registered nurses' experiences of communication with patients when practising person-centred care over the phone: a qualitative interview study. BMC Nurs. 2020 Jun 19;19:54. doi: 10.1186/s12912-020-00448-4. PMID: 32577097; PMCID: PMC7304080.
10. Pirhonen L, Gyllensten H, Olofsson EH, Fors A, Ali L, Ekman I, Bolin K. The cost-effectiveness of person-centred care provided to patients with chronic heart failure and/or chronic obstructive pulmonary disease. Health Policy Open. 2020 May 12;1:100005. doi: 10.1016/j.hpopen.2020.100005. PMID: 37383310; PMCID: PMC10297760.
11. Wallström S, Ali L, Ekman I, Swedberg K, Fors A. Effects of a person-centred telephone support on fatigue in people with chronic heart failure: Subgroup analysis of a randomised controlled trial. Eur J Cardiovasc Nurs. 2020 Jun;19(5):393-400. doi: 10.1177/1474515119891599. Epub 2019 Nov 29. PMID: 31782661.
12. Fors A, Blanck E, Ali L, Ekberg-Jansson A, Fu M, Lindström Kjellberg I, Mäkitalo Å, Swedberg K, Taft C, Ekman I. Effects of a person-centred telephone-support in patients with chronic obstructive pulmonary disease and/or chronic heart failure - A randomized controlled trial. PLoS One. 2018 Aug 31;13(8):e0203031. doi: 10.1371/journal.pone.0203031. PMID: 30169539; PMCID: PMC6118377.
13. Ali L, Fors A, Ekman I. Need of support in people with chronic obstructive pulmonary disease. J Clin Nurs. 2018 Mar;27(5-6):e1089-e1096. doi: 10.1111/jocn.14170. Epub 2018 Feb 27. PMID: 29149463; PMCID: PMC5900916.