In connection with Anders Olauson's promotion to honorary doctor, the Sahlgrenska Academy is organizing a half-day symposium. Theme: Rare health conditions in children and young adults – and how society needs to contribute more to the patient's life journey.
The symposium will highlight the current state of research on rare health conditions from various perspectives, including health economics and legal aspects, as well as the viewpoints of patients and families.
PROGRAM
10:00 Welcome from Sahlgrenska Academy, Magnus Simrén, Professor, Medical Gastroenterology, University of Gothenburg.
10:05 Goals for the day, Anders Olauson, newly appointed Honorary Doctor of Medicine, University of Gothenburg.
10:15 Health economics, John Bridges, Professor, Biomedical Informatics and Surgery, Ohio State University.
10:45 Legal frameworks for patient pathways, Ulf Petrusson, Professor, Law, University of Gothenburg.
11:15 Looking ahead, Anders Olauson.
11:35 The Ågrenska Model, Zozan Sewger Kvist, CEO, Ågrenska Benefit Corporation.
11:50 The Gothenburg Initiative, Kate Abrahamsson, Professor of Pediatric Surgery at University of Gothenburg and Director of Queen Silvia Children’s Hospital.
12:10 Living in between a patient journey and the patient pathway, Rebecca Tvedt Skarberg, Norwegian Advisory Unit on Rare Disease at Oslo University Hospital, and patient advocate EURORDIS and ERN BOND.
12:30 Key takeaways, Jovanna Dahlgren, Professor, Pediatric Endocrinology, University of Gothenburg.
12:45 Refreshments and snacks.
Moderator: Jovanna Dahlgren.
If you have any questions, contact: : klinvet@gu.se