Adole7C - international
Short description
The Adole7C-international project is a collaboration between Leuven and Ghent in Belgium and Cape Town in South Africa where the aim is to enable comparisons at an international level at the hospital and health care organizational level. This study initially includes young people with heart defects and rheumatic heart disease in Sweden, Belgium and South Africa.
Researchers in the project
Project manager: Philip Moons (Belgium), Liesl Zühlke (South Africa), Ewa-Lena Bratt (Sweden)
Project coordinator: Ewa-Lena Bratt/Sandra Skogby
Doctoral student: Sandra Skogby
Other partners:
Bengt Johansson Norrland University Hospital in Umeå; Eva Goossens University of Antwerp, Belgium; Liesl Zühlke Red Cross War Memorial Children's Hospital and University of CapeTown, South Africa.
Work plan:
- To investigate the prevalence of care gaps in young people with congenital heart disease and rheumatic heart disease in South Africa and Sweden.
- To identify hospital-related predictors and healthcare factors, in addition to patient-related predictors, of discontinuation of cardiac follow-up in young people with congenital heart disease or rheumatic heart disease.
- To determine the effect of care gaps in young people with congenital heart disease or rheumatic heart disease in South Africa and Sweden.
Impact
Adole7C-international will examine hospital-related and healthcare system factors to identify causes in addition to patient-related factors as predictors of interruptions in care in young people with congenital heart disease and young people with long-term rheumatic heart disease. The international cooperation is crucial to be able to study health care system factors.
