High grade brain tumours

The  aim of the project is to investigate the health-related quality of life, emotional well-being, life situation, and support needs of individuals with high-grade brain tumors and their relatives. The study spans over time to, based on the results and existing literature, develop a model of support for these families where the right resources can be introduced at the right time during the disease's progression.

The model is intended to provide families with person-centered, close care based on interprofessional teamwork. Through collaboration between hospitals, municipalities, and other relevant entities for the family, this close care can enhance support from diagnosis to end-of-life care.

Publications

Quality of life in patients with glioblastoma and their relatives

Health-related quality of life and emotional well-being in patients with glioblastoma and their relatives

The Gothenburg population-based glioblastoma research database: Methodological aspects and potential impact